Saturday 29 August 2009

Grandma Estelle

The role of grandparent comes with many privileges and high expectations. No one takes their role in this capacity more seriously than Max’s grandmother, Estelle. She has risen to the challenge in a charming way, sharing with Max her patience, humour and wisdom. The attention and understanding she gives so generously has deep importance far beyond the blood bond. M
ax is a fourteen-year-old, hormonal teenager; he also has Down’s syndrome. The two of them cut a cute, endearing picture, appearing like an old married couple, rather than grandmother and grandson with sixty years between them.


Their similar height is not the only characteristic they share. Both personalities are drawn to theatre, be it singing, dancing, high dramas on or off the stage. They embark on their regular outings together with almost identical exuberance and delight. Grandma Estelle invariably picks up Max from home, arriving in her immaculate burgundy Nissan Micra. Max will be fluttering up and down the depth and breadth of the lounge window, eagerly awaiting her arrival and his cheers of excitement,
“Grandma Estelle’s here, she’s here!”
Can be heard a good five minutes before the door bell goes. It takes her that long to park.

Grandma Estelle is a neat, trim lady who arrives equipped for all uncertainties of weather. Their mutual adoration is self-evident and Max suffers no dilly-dallying as he loads his carefully packed baskets full of “show stuff” into her car, now neatly resting in our driveway. He attempts to take everything but the kitchen sink.
“Oh Max! There’ll be no room for us”, giggles his grandma.
Videos of himself at his own precious birthday parties, costume outfits and props for his “shows”, large pool cue, substituting for Caracticus Potts’s stick in “Old Bamboo” from that Chitty Chitty Bang Bang favourite, biker leather jacket, and Danny Zuko sunglasses. Once the car has been loaded Max is keen to get going, ordering us out of the way.

Their first stop is usually the cinema, preceded by a visit to a Pizza restaurant nearby where Max shamelessly fleeces his Grandmother for as much ice cream as he can manage. But before they set off there is the delicate matter of manoeuvring out of the driveway. This is a joy to watch. Appearing like Mr and Mrs “We expect the world to stop still, before we attempt to cross the road”. They both take time to settle in, double checking and rechecking each other is locked and loaded. Once the engine ignites things really start to kick off as the car slowly inches forward out from the driveway and stops. Repeated nervous glances from them both examine the passing traffic on the perilous road before them. Doubt is in the air.

They pause, reflecting on the danger, and exchange a moment of disbelief and hesitancy. Steeling courage the Nissan Micra edges forward once again only to be rocked in a gale of turbulence as a car speeds past. Momentarily aghast, the pair are thwarted and paralyzed with panic. Time is a great healer and soon, once again they bravely attempt to swing out from the driveway. With a little prayer and perhaps a small shove from on high, they finally make it. We wave goodbye, relief on our faces as we peek out from behind the open front door where we have all been hidden. The car slowly chugs off down the road, and a considerable time later manages to disappear from sight.

After their lunch and a film it’s back to Grandma Estelle’s house for the big “show” and egg mayonnaise sandwiches. The drive will be so slow it’s a wonder they arrive before nightfall. Both would prefer to be the only vehicle on the road, but they bravely make the best of it, suffering the North London traffic. Max loves routine, Grandma Estelle loves routine, their love is a match made in heaven.

Max is never amused when I arrive to pick him up, often throwing himself headfirst onto the sofa, bottom protruding high into the air, heeding no suggestion that he might be behaving like an utter plonker. He delays departure expertly, putting socks and shoes on at a snail’s pace, as well as blatantly refusing to budge. They both look exhausted, Max, because he will have put his life and soul into each and every one of his performances he’s gleefully perfected just for Grandma Estelle. And Grandma Estelle, because she will have watched and listened to every performance with daisy-fresh enthusiasm.

Max will have dragged her from the cinema, chatted incessantly throughout the drive home, forced her to watch his “shows”, bossed her into providing his favourite tea, and Grandma Estelle, loving and cherishing him, will have willingly suffered in good grace, with the delicious incentive of a small dry sherry with her name on it.

8 comments:

Carol said...

Just read your excellent book and felt I must leave a comment. So good to read such an honest account of the problems faced by special needs children and their parents. I have a 9 year old autistic son and could relate to many of the situations you have faced. I found your comments on special school/mainstream school particularly useful as this is a decision I will have to make in the near future. I shall be a regular reader of your blog now!
Carol

Wobbe007 said...

Hi Sandy, I am half way through your book and am thoroughly enjoying it. So much so I was compelled to look you up. I have a little boy with Down's Syndrome, Oscar, he is currently 10 months old. Our start is very similar to your own in that I knew as soon as I saw him and asked the nurse just like you did, 16 hours later my worst fear was confirmed. I am now, 10 months down the track struggling with shocking comments from people I know and don't know about keeping a child with DS. My bubble has burst and I have recently realised that I am not coping very well with the diagnosis and people's attitudes. In this day and age it is quite astounding but like your story I don't believe people realise when they say hurtful things, it just goes over their heads. So I am seeking help through different avenues and another Mum in my group whose child also has DS lent me your book. It is actually providing me with some peace and I am finding it useful and very inspirational. I live in Sydney. I am going to try and search out a similar organisation like Chickenshed in Australia - wish me luck, it seems companies with such a powerful and wonderful vision are few and far between. Thank you for writing this book. I feel everything you have written and it is good to know I am not alone (you were once where I am). Please feel to email me if you like, I'd love to hear back from you but understand you may get stacks of emails. My email is lucyoates@hotmail.com. Kind regards, Lucy from Sydney.

Sandy Lewis said...

Dear Carol.
Thank you! Comments like yours make me feel there are so many of us out there! It's good to feel we are not alone. Best of luck to you and your son.
warmest wishes Sandy x.

Sandy Lewis said...

Dear Lucy,
Keep that chin up, it does get better I promise. I've emailed you a reply. Let me knew if you fail to get it!
best wishes Sandy x.

susie said...

Hi Sandy, whow this is my first attempt at a blog scarry, I am half way through your wonderful book, we have been blessed with our darling grandchild Lara who has downs and she is now 4 just started mainstream school statmented. She is fab, is I still continue to be a brave blogged you will be hearing from me again.
Blessings to you and your lovely family. Susie

Sandy Lewis said...

Dear Susie,
Thank you so much for your comment.Lara must bring you so much joy! If there's one thing I've learnt it's to live in the moment and cherish everyday. Sounds as if you do! Love to you & all your family, Sandy xxx

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Randi Samsonsen said...

This was a lovely bloog post