Tuesday 6 May 2008

Living with Max

Great news! Living with Max is now published! So for anyone who is curious to have a read, you can click on the link to http://www.rbooks.co.uk/ and order a copy, plus there is the bonus of a discount! You can get 30% off plus free P&P. Just enter MAX in the promotional code box at the checkout.

12 comments:

Anonymous said...

Hi Sandi Lewis
I listened to your interview on radio 4 yesterday! I gave birth to my son Fergus 8 weeks ago, he was diagnosed with Downs Syndrome at birth. Your interview and your sons wonderful conversations left my husbund and i full of hope and excitement for Fergus' future. I have ordered your book! Thanks again for such an uplifting interview! Nicola Smith, Hampshire

Sandy Lewis said...

Hi Nicola, I can't begin to describe how thrilled Paul & I were with you're message. Take hope from us & Max. Enjoy every second of Fergus and give him a big kiss from me! Sandy xxxxxx

wardy2 said...

Hi Sandy,
I have just finished the last 2 chapters & as I said in my message yesterday I have found it such a great help. I fully understand the highs & lows of having a child with special needs. our daughter has Sturge-Weber syndrome & is 14 now, so is suffering with the "lovely" hormones too, she is very non compliant with me but will do everything for my husband, which is so annoying & frustrating!
Charlie sounds so similar to our other daughter who is 10 as she has had alot of resentment build up mainly over the last year or so, she is going through feeling that she wants a sister who could take her out & do stuff with her, and she finds it hard because most of her friends are frightened of Kez, but if they come round Kez' burping on demand is soon found very funny & breaks the ice although it is embarrasing for us!
My mum always says that children with special needs go to the right families which does seem true sometimes, but as Kez has got older I have felt the "why us?" feelings more frequently because as they get older what they do is not so cute or acceptable. But I must add every day without fail Kez always makes us laugh with her cheeky humour!
Thanks again for such a wonderful book, it has made me feel that how we feel isn't so odd, & that we are not the only ones going through it.
Best wishes to you all,

Jo x

Anonymous said...

hi sandy.
im waitin for your book, i cant wait to read it. i have a little boy called josh who is 16months old and was diagnosed with downs syndrome at birth. Hes been through so much all ready. i just want learn more and hear your story. xxx

Sandy Lewis said...

Hi Michelle,
Hope you enjoy my book. I hope it lets you realise there are many of us out there all experiencing similar issues.You are not alone! Keep in touch. Very best wishes Sandy x

sarah said...

Hi Sandy
Thank you for sharing your very honest story of "living with Max" - I laughed and cried! My son Joseph was born with Down Syndrome 10 weeks ago, he also has TOF/OA and has been in hospital since birth. We are all looking forward for Joe to be able to come home to us and his 4 sisters. I am sure Joseph will enrich all our lives, like Max has yours.
Thank you again
Sarah Clapson, Kent

Sandy Lewis said...

Hi Sarah,
Thank you for your comments! Joseph is one lucky chap. A mum who is very together & experienced after four girls, and five women to run around for him! Wow! He will bring you such joy. Let's hope he's home with you all very soon Enjoy. x x x x

Unknown said...

Hi Sandy

I am in the middle of reading your book. I started it last night and just could not put it down! I have laughed and cried at it. I have an 18 month old little boy, Oliver, who has Down's Syndrome. I can completely empathise with you from everything I have read in your book so far. It is almost uncanny. I feel I could just hand your book to anyone I know and say "read that, that is how I have felt". My husband is reading it too (we are sharing it!) and he feels the same. Thank you for sharing your experiences with us and I can't wait to carry on reading it!

Like Max, Oliver is a truly remarkable little boy who brightens our lives with his big chubby smile. We also have another gorgeous son, Alex, who is 3 1/2.

Sarah, Kent

Sandy Lewis said...

Hi Sarah,
You are the reason I wrote my book!(Max's middle name is Oliver!)Your comment was so encouraging, thank you. Actually it was more than that, it made me cry. warmest wishes Sandy xxxx

Anonymous said...

Hi Sandy, I contacted you last year when Joseph was born. I am sorry to share this with you but Joseph passed away on 7 August aged 3 months. I wish you and your handsome Max and family lots of love. I miss Joseph so much and miss him growing up, every day I wonder what he would be doing now. Sorry this is sad news, when your blog is full of happiness and love. I am still the proudest mummy in the world to be chosen as Joseph's mummy and I will never forget him or what he taught me.
with love Sarah Clapson x

Sandy Lewis said...

Dear Sarah,
I was heartbroken to hear about you losing Joseph. I'm so very sorry. I am in the middle of dealing with grief myself and it's a scary, painful place. Having to say goodbye to your child must be the very worst grief. I am at a loss of what else to say..... You and your family are in my thoughts. Very best wishes Sandy xx

Anonymous said...

Hi Sandy
I'm reading 'Living with Max' and it reminds me of myself having my baby boy Billy. The book is bringing out all my emotions, very similar to yours. Billy had Downs, cerebral palsy and a heart gap. Unfortunately, he passed away last year just 3 months old. I'm writing a book in memory of him. I would love to get in touch with you and ask for advice if that's Ok. My blog is billybuuz.blogspot.com I really think you are doing great with Max and Charlie, lucky boys to have parents like you and Paul. Take care. Uuganaa